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charlottesweb
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PostSubject: Re: From puter of mimTN   November 6th 2010, 6:27 pm

So happy you are home and posting...We have all missed you humor..Very Happy

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mimTN
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PostSubject: Re: From puter of mimTN   November 6th 2010, 6:32 pm

'Life isn't about how to survive the storm, but how to dance in the rain.'

Charlotte, love that. that is my new theme. I love rain storms anyway.
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PostSubject: Re: From puter of mimTN   November 6th 2010, 6:38 pm

Welcome back Mim!!!
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PostSubject: Re: From puter of mimTN   November 6th 2010, 6:40 pm

So glad to hear from you Mim. We all missed you.
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PostSubject: Re: From puter of mimTN   November 6th 2010, 7:03 pm

Glad to have you back Mim, humor and all. Take care of yourself, easy does it Very Happy
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PostSubject: Re: From puter of mimTN   November 6th 2010, 7:19 pm

Mim!!! So happy you are home. Smile

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PostSubject: Re: From puter of mimTN   November 6th 2010, 9:15 pm

Mim, so happy you are home. Rest and take care, I missed you.
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PostSubject: Re: From puter of mimTN   November 6th 2010, 9:22 pm

big hug mim. We missed you. Great story.
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PostSubject: Re: From puter of mimTN   November 6th 2010, 9:31 pm

Alice, you are TOO much!! cheek kiss
Most of us would be crying and probably hating the doctors but you made them feel good about what they were doing.
So glad you are home and things are looking great for you!!!!
Stay strong and positive, Alice, like you always are.
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PostSubject: Re: From puter of mimTN   November 6th 2010, 9:41 pm

Mim glad you are home. Take care of yourself and get plenty of rest. Hug wrap up in arms

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PostSubject: Re: From puter of mimTN   November 6th 2010, 9:48 pm

mimTN wrote:
'Life isn't about how to survive the storm, but how to dance in the rain.'

Charlotte, love that. that is my new theme. I love rain storms anyway.

Hug wrap up in arms

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PostSubject: Re: From puter of mimTN   November 6th 2010, 10:05 pm

Welcome back Mim, you were truly missed!

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PostSubject: Re: From puter of mimTN   November 6th 2010, 10:29 pm

I love to hear from you (((Mim)))

Welcome back <3 Smile

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PostSubject: Re: From puter of mimTN   November 6th 2010, 10:49 pm

So personal, so special. I'm very glad you are home and I am glad you are posting.



Smile
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PostSubject: Re: From puter of mimTN   November 6th 2010, 11:44 pm

Mim, glad you are home. cheek kiss
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PostSubject: Re: From puter of mimTN   November 7th 2010, 6:38 am

Mim!!
big hug

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PostSubject: Re: From puter of mimTN   November 7th 2010, 12:46 pm

Mim, I'm so glad you're home and felt up to giving us an update. We've all missed you and want to hear more from you when you feel up to it. Kiss of Love

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PostSubject: Re: From puter of mimTN   November 7th 2010, 2:00 pm

I posted and read a little, then had to go lay down. I have a lot of drs. appointments and to get on the new cancer meds and I won't be able to be on as much as I want to but please know. I got multiple answers to why I have been so sick with the upper and lower GI and it will all be treated.

what is holding me back is all the fluid still on my left lung. I may still have to go back in and have a chest tube in that side if it does not go away now that I am off the meds. I have a month or so of getting a few things taken care of then I will be back for real. not getting enough oxegen just drains you. Mine hovers between 90-94% but drops to 80s with any exertion. I don't know how good or bad that is but it feels bad enough I want the fluid out ASAP.

I miss you all so much.
Now, I am going to rest. My daughter and grands were over, cleaning out my fridge and freezer. throwing everything out. Seems the fridge decided while I was gone was a great time to quit working. YUK! They have me set up with ice chest by my recliner and everything with in reach and my daughter and grandson will bring me whatever I think I can eat as I ask for it.
lOL, I may get spoiled.
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PostSubject: Re: From puter of mimTN   November 7th 2010, 2:45 pm

Oh Mim, what a mess! I am glad you are home and things are clearer for you.

Would you like more books? Just let me know and I will send another box asap. I wish you felt better and I do hope you don't have to have the tube again.

Let me know about the books.
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PostSubject: Re: From puter of mimTN   November 7th 2010, 3:59 pm

Welcome home mim! I love you!!! cheek kiss

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PostSubject: Re: From puter of mimTN   November 8th 2010, 6:58 am

Welcome home MIM, take it easy and enjoy the pampering. Love ya!!!

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PostSubject: Re: From puter of mimTN   November 8th 2010, 12:05 pm

Welcome home MIM, let them pamper and spoil you!! You are such a sweet soul <3 cheek kiss

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PostSubject: Re: From puter of mimTN   November 9th 2010, 10:03 am

cheek kiss mim
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PostSubject: Re: From puter of mimTN   November 10th 2010, 10:46 am

Oh Mim I have been thinking about you and praying for you even while I was gone.
It is so good to catch up on you and I will pray you continue to improve and feel better and better as the days go on Smile
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PostSubject: Re: From puter of mimTN   November 10th 2010, 5:50 pm

Mim just wanted me to let everyone know that she is getting better but still having a hard time sitting at computer for long periods of time. She will be back soon with an update and is thinking of ya'll.

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PostSubject: Re: From puter of mimTN   November 10th 2010, 5:59 pm

Yes, Memphy send books, please. I am pretty much confined to recliner. I have been sleeping sitting up for 6 months cause I can't breath. Now I am sore and hurt on right side where they glued my lung sack to my lung with chemicals they injected through chest tube. LOL, don't ask. Yes, it hurt and still does.
A friend took me to GI Dr. yesterday. I was starving because of a yeast infection that had gone untreated in my esophagus, (thrush) common in leukemia, Who knew? I am beginning to be able to eat a little and have another 11 days on treatment. I love the GI Dr. Have appointment with Nurse Practitioner tomorrow, that is just a few miles from my home to handle day to day stuff. It was recommended that when someone has to see so many specialist they need one person looking at whole picture.
I think that is smart and it is one of the changes I am making.

I just sent Speedi a mp, so maybe she can explain why I am so sore, the gluing thing. I am getting better, it is just going to take a little time.

this is what I wrote on the board in my room the last week I was in hospital,

"They call us patients for a reason"
see below

Dear God,
Please send me patience,
But hurry!
love,
Alice

lol, that says it all, I think.

oops, sorry Speedi, I just could not resist. I don't want ya'll to worry about me,
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PostSubject: Re: From puter of mimTN   November 10th 2010, 6:44 pm

Thanks Alice. Thrush. I never would have thought of that... I associate that with babies.

Sounds absolutely miserable about the glue. I can't stand when I get superglue on my fingers and they stick together!

I'm glad you will have a core person. I hope you find her as likeable as you have all the doctors you've encountered... although I have a feeling they like you even more than you like them.

Love you Miss Alice. Thanks for letting us know. (I'm going to bed early tonight... the three amigos again tomorrow lol)
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PostSubject: Re: From puter of mimTN   November 10th 2010, 7:02 pm

Oh Mim, I had so hoped you would be feeling better! I will mail lots of books - a big box!

I may not get them out until Saturday but I will send them!

I hope you can get to eat soon!! Hang in there friend.
xo
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PostSubject: Re: From puter of mimTN   November 10th 2010, 7:14 pm

Mappy wrote:
Thanks Alice. Thrush. I never would have thought of that... I associate that with babies.

Sounds absolutely miserable about the glue. I can't stand when I get superglue on my fingers and they stick together!

I'm glad you will have a core person. I hope you find her as likeable as you have all the doctors you've encountered... although I have a feeling they like you even more than you like them.

Love you Miss Alice. Thanks for letting us know. (I'm going to bed early tonight... the three amigos again tomorrow lol)

Fungal and yeast opportunistic infections are associated with any type of immunodeficiency, be it during early development, cancer, immunosupression for organ transplants...

I agree with Mappy, it would be good for you to have a central coordinator for your care, Mimsy. I am sure that your Nurse Practitioner will serve as an excellent advocate for your care. I hope you start feeling more comfortable soon.

Please let me know if you need anything.

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PostSubject: Re: From puter of mimTN   November 10th 2010, 7:59 pm

am trying new tactic. on a little then rest.

My daughter and older grandson where here, they brought new ice, took out garbage, brought food, etc. They surprised me with a banana pudding. I was able to eat about a cup of it. A friend had asked me what could I eat no matter what in the fruit section. So they brought me blackberries and bananas.

LOL, my daughter and I had a laugh, she knew I would notice they are green and make a joke. That is what she said after I said, "I am encouraged, she bought green bananas"
lol, they are used to my sense of humor.

Thank you Memphy. that will give me something to look forward to for next week. That means a lot, thank you.

Hugs, Mappy. enjoy those babies. My grandaughter is a little scared of me now, after seeing me in hospital with chest tubes and stuff, she comes in and stands back and just stares at me with big eyes. I mentioned it to my daughter and she is going to see if anything is bothering her. This is a lot for a 9yr old.

Current, thank you, yes I always thought of thrush as something babies get, but the doctor explained what you said. It is not a hard thing to fix, you just have to fix it before it gets so advanced. Thank goodness, the not eating is something simple to fix.
When I went into hospital they tell me I was carrying an extra 30-40lbs from the fluid around my lungs, I swear that is what DRs said, but I was showing a 20lb weight loss. So that means over last 2 months I have lost at least 50 lbs. from this. that blows my mind.
lol, see y'all in a few days.
hopefully with more progress and good news.
I miss actively posting and participating more than I can say.
Kiss of Love
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PostSubject: Re: From puter of mimTN   November 10th 2010, 11:13 pm

Mim, always thinking good thoughts for you........... cheek kiss

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PostSubject: Re: From puter of mimTN   November 10th 2010, 11:23 pm

Mim - Kiss of Love
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PostSubject: Re: From puter of mimTN   November 12th 2010, 7:17 am

Mim.... Hug wrap up in arms

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PostSubject: Re: From puter of mimTN   November 12th 2010, 8:28 am

mim - I keep you in my thoughts and prayers! big hug
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PostSubject: Re: From puter of mimTN   November 12th 2010, 8:30 am

Hugs Mim!

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PostSubject: Re: From puter of mimTN   November 12th 2010, 6:56 pm

Thinking of you Mimsy! big hug
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PostSubject: Re: From puter of mimTN   November 12th 2010, 7:23 pm

Mim I'm hoping you're feeling better every day! here is a kiss for y

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PostSubject: Re: From puter of mimTN   November 12th 2010, 7:36 pm

Hug wrap up in arms
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PostSubject: Re: From puter of mimTN   November 12th 2010, 9:08 pm

I am better today. I bought one of those roasted chickens and ate a whole leg and thigh. I discovered I can get savory food down better than the sweet fruits and stuff. The new GI man put me on a stronger dose of the thrush meds, 250mg vs the 100mg the other Dr had me on, for another 10 days. I have been taking the higher dose for 3 days and I think it is making a difference.

a little tired cause I had first appointment with my new Nurse Practitioner yesterday and today I went to store, I was desperate for something I could eat. lol, thank goodness for roasted chicken. my grandson stopped by and checked on me and my daughter is coming tomorrow.

So that is latest update from the recovery room. It is getting better, just slow. I can't get over how weak I am and how the littlest things make me so exhausted. It sucks. But I am not giving in and not giving up. Seems I just get more determined and angry the more this leukemia messes with me.
Guess it pays to be a stubborn bitch after all. lol.

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PostSubject: Re: From puter of mimTN   November 12th 2010, 9:15 pm

Kiss of Love
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